For ideas on how to plan and carry out your own community FASDay event, go to www.fasday.com .
www.come-over.to/FASCRC operated by Arizona FASD advocate Teresa Kellerman, is a HUGE, creative site with many national and international links! You will meet many children and adults living with FASD.
A great educational resource for families with children involved in the criminal justice system. Also something to be share with your child’s lawyer….
Canadian Centre for Substance Abuse
There is plenty of up-to-date material on FASD at www.ccsa.ca (Canadian Centre for Substance Abuse). Karen Palmer runs the hotline at 1-800-559-4514 and will mail you material.
www.faslink.org is a Canadian site that shows you how to join FASlink, the online support group; it also the route to the FASlink archives where you will find answers to almost any FASD question you can think of. FASlink is a huge general listserv, with about 100 posts per day – a little daunting until you learn to focus on the subject threads of interest. To join send an e-mail to email@example.com with the message: subscribe FASlink
Dr. Ann Streissguth at U. of Washington Faculty of Medicine
http://depts.washington.edu/fadu/ will tell you about the great work done by Dr. Ann Streissguth at U. of Washington Faculty of Medicine in Seattle: lots of technical info.
National Organization on Fetal Alcohol Syndrome
www.nofas.org is the site for the National Organization on Fetal Alcohol Syndrome: up-to-date info and strategies for caregivers.
Elspeth Ross, FASD educator, Ottawa, ON firstname.lastname@example.org
Maple Ridge, BC
asantecentre.org 604-467-7101 or 1-866-327-7101
Specialists here develop detailed plans for the care of a child, youth or adult suspected of living with fetal alcohol spectrum disorder (FASD), and they connect families with supportive programs. A doctor’s referral is not necessary.
Community Living B.C. Personalized Supports Initiative
personalized-supports-initiative 1-877-660-2522 or call your local CLBC contact listed at the above link.
Ministry of Children and Family Development FASD Key Worker and Parent Support Services
British Columbia: www.mcf.gov.bc.ca/fasd/kw_ support.htm
Parents can request these free services even before their child gets an FASD assessment. Key workers can help a family navigate the assessment process, provide in-home parenting consultations, education programs for teachers and other caregivers, and assist in accessing other social services.
Canadian Centre for Addictions: http://canadiancentreforaddictions.org
Books & Printed Material
Most of these titles are available from Parentbooks, 121 Harbord St., Toronto, ON, 416-537-8334; toll-free 1-800-209-9182
(www.parentbooks.ca) or Minga Marketplace in Maple Ridge, BC (http://mingamarketplace.com/)
Damaged Angels by Bonnie Buxton, Knopf Canada. A personal, comprehensive world perspective of FASD issues. A must read for every family and professional dealing with FASD. Foreword by Dr. Ab Chudley and available from FASDepot, better bookstores or at a discount from www.amazon.ca
Not Exactly As Planned: A Memoir of Adoption, Secrets and Abiding Love by Linda Rosenbaum. Not Exactly As Planned is a captivating, deeply moving account of adoption and the unexpected challenges of raising a child with Fetal Alcohol Syndrome. Available from FASDepot, better bookstores or at a discount from www.amazon.ca
FASD Strategies, Not Solutions, published by the Government of Alberta and is available free of charge. It is a comprehensive guide to managing FASD issues and may be downloaded from www.region6fasd.ca
Fantastic Antone Succeeds (1993) and Fantastic Antone Grows Up (2002), Judith Kleinfeld and Siobhan Westcott, Univ. of Alaska Press.
FAS/E: A Standard of Care for Toddlers, Children, Adolescents and Adults, FAS Family Research Institute, Lynnwood, WA 253-531-2878
How to Help Someone Who Has a Fetal Alcohol Spectrum Disorder
By Chris Arnold http://www.crisisprevention.com/Blog/September-2015/FASD
Understanding the Occurrence of Secondary Disabilities in Clients with Fetal Alcohol Syndrome (FAS) and Fetal Alcohol Effects (FAE), Final Report, Aug. 1996. Univ. of Washington School of Medicine, Fetal Alcohol and Drug Unit. 206-543-7155. A ground-breaking longitudinal study on the risks and preventive factors of people struggling with prenatal alcohol damage. Lots of charts and graphs, easy to understand.
Tough Kids and Substance Abuse, a great book by Manitoba educators Paula Cook, Richard Kellie, Kathy Jones and Laura Goosen. Designed to be photocopied, a series of easy lessons for tough adolescents, plus how-tos for teachers and other professionals. Only C$15 from Addictions Foundation of Manitoba Library, 204-944-6233.
A good FREE reference: FAS: The Real Brain Drain, by former Mississauga South MP Paul Szabo 905-822-2111.
AAP FASD Toolkit “The American Academy of Pediatrics (AAP), with support through a cooperative agreement with the Centers for Disease Control and Prevention’s (CDC) National Center on Birth Defects and Developmental Disabilities (NCBDDD) has developed a comprehensive, web-based FASD toolkit that helps to raise awareness, promote surveillance and screening, and ensure that all affected children receive appropriate and timely interventions. The toolkit includes: General information about FASDs including common definitions and frequently asked questions for providers and parents/families. Resources for identification, diagnosis and referral including a clinical decision algorithm and provider checklist…”
(Internet mail lists Canada & international, Ontario, B.C.)
(support for families with children or adults with FASD across Canada)
(for individuals, parents, professionals who deal with FASD)
Olderfas mail list
(support list for parents & mentors of adults with FASD)
(for FASD Ontario Network of Expertise and Ontario FASD committees & coalitions)
(support for Ontario families with children or adults who have FASD)
(FASD listserv for British Columbia run by Dr. Kimberly Kerns at University of Victoria)
A Bright Light Dimmed: 23 min DVD based on Global TV report on the Buxton/Philcox family experience- good introduction to FASD. C$20 from FASDepot (email@example.com)
Why Do Women Drink in Pregnancy? See the 4 min video here (http://www.neurodevnet.ca/news/fasd-stigma-why-do-women-drink-when-pregnant)
Different Directions: a series of 3 videos with training manuals and audio tapes produced by Mothercraft/Breaking the Cycle and Ontario North for the Children. C$50/set. Call Pat Spadetto at 705-567-5926, firstname.lastname@example.org for information on additional kits and videos.
FASDO is a listserv for parents and professionals in Ontario who share information about FASD issues.
To join: http://groups.yahoo.com/group/fasdo/join
FASDcan is a listserv for parents and professionals in Canada who share information about FASD issues.
To join: http://groups.yahoo.com/group/fasdcan/join
“Living with FASD: A Guide for Parents and Caregivers.”
Written by Vicki Russell, a member of the FASlink.
Toronto & GTA: FASD Family Support Group is for parents and caregivers of children with FASD. Every third Saturday of the month at Sick Children’s Hospital in Toronto (except holiday weekends). All welcome – please call 416-264-8000 for info and room number. Other support groups in Canada and abroad are listed on the Family Support Groups page.
FASworld Canada is a pro-active, non-profit organization dedicated to telling the FASD story and is linked to other FASD organizations around the world. Let us know how you can help. For workshops or presentations, get in touch with: Brian Philcox, FASworld Canada, 250 Scarborough Golf Club Road, Toronto, ON M1J 3G8; 416-264-8000 or e-mail email@example.com
FASDay or International Fetal Alcohol Syndrome Awareness Day has been celebrated around the world on Sept. 9 since 1999 . Find out how you can be part of FASDay at www.fasday.com
Let us know if you have other useful sources that have helped you cope with FASD
MEDIA ADVISORY / INTERVIEW OPPORTUNITY
Nearly 30% of expectant mothers still drink alcohol while pregnant
Prenatal exposure to alcohol can permanently damage the baby’s brain
WHAT: FASDay – Fetal Alcohol Spectrum Disorder Awareness Day
The first FASD Awareness Day was celebrated on 9/9/99 in Toronto – the ninth day of the ninth month as a reminder that during nine months of pregnancy a woman should abstain from alcohol. Now, 15 years later, in every time zone from Australia to Alaska, in more than 42 countries around the world, bells are rung, proclamations are issued and events are hosted to raise awareness about the dangers of drinking alcohol while pregnant.
In Toronto, FASDay will be recognized with a “Pregnant Pause” where volunteers from all over the GTA will sport a ‘baby bump’ (a balloon under a FASD t-shirt) to help raise awareness and change the world, one baby at a time.
WHEN: September 9, 2018.
WHERE: Location to be announced
WHO: Bonnie Buxton and Brian Philcox of FASworld, are co-founders of International FASD Awareness Day and adoptive parents of Colette Philcox, who was diagnosed with alcohol-related neurodevelopment disorder. Bonnie shared her personal struggle in her book Damaged Angels: A Mother Discovers the Terrible Cost of Alcohol in Pregnancy.
WHY: Every day, there are more babies born with FASD than HIV, Down Syndrome and Spina Bifida combined. Fetal Alcohol Spectrum Disorders are the most common, most expensive, yet most preventable of all mental disorders in the industrialized world. However, they are preventable…by abstaining from alcohol during pregnancy.
For more information or to schedule an interview with Brian or Bonnie, please contact:
416-264-8000 or 647-222-1937
For ideas on how to plan and carry out your own community FASDay event, go to www.fasday.com